The first conversation you have with parents and families about an out-of-range newborn screening result is critical. Parents of newborns are often dealing with physical and emotional changes as they adjust to their new family. Receiving an out-of-range newborn screening result is often unexpected and can lead to uncertainty.
Developed with the input of providers and parents, this guide provides a framework and conversation starters to help you:
- Share clear, accurate, and timely information with parents and families.
- Assess family members’ understanding of this information.
- Help parents and families begin to navigate a wide range of emotions.
- Empower parents and families to take steps that can lead to positive health outcomes for their child.
Download the guide (PDF - 1 MB)