Newborn screening (NBS) includes a series of tests: Blood Spot Screening, Pulse Oximetry Screening for critical congenital heart disease, and Hearing Screening. However, it is more than only these tests. NBS is an interconnected system of organizations, programs, and experts who work together to make sure that caregivers and health professionals have information they need to understand NBS and know where to find more information when needed.
Below is a list of trusted resources. Some resources will link to general NBS information while others will be more helpful for health care providers. For resources for a specific condition, please visit the condition page for recommended links.
Federal Agencies | Professional and Medical Organizations | Support/Advocacy Organizations
Federal Agencies
- Centers for Disease Control and Prevention
- Health Resources and Services Administration
- National Institutes of Health
Professional and Medical Organizations
Some professional organizations create statements to share or clarify their position on newborn screening. Organizational statements on newborn screening, if available, are included below.
- American Academy of Family Physicians
- American Academy of Pediatrics
- American College of Medical Genetics and Genomics
- National Coordinating Center for the Regional Genetics Networks
- Newborn Screening Translational Research Network
- ActSheets (for health care providers)
- Association of Maternal and Child Health Programs
- Association of Public Health Laboratories
- Association of State and Territorial Health Officials
- Association of Women’s Health, Obstetrics, and Neonatal Nurses
- Child Neurology Society
- Clinical and Laboratory Standards Institute (for health care providers)
- National Society of Genetic Counselors
- Society of Inherited Metabolic Disorders (for health care providers)