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Newborn Screening Resources

A system of organizations, programs, and experts work together to make sure caregivers and health professionals have the information they need to understand newborn screening (NBS). This page features links to many of these organizations. Each one is a trusted source for additional information about NBS.

Some of the sources linked below provide general information about NBS that may be of interest to parents. Others offer information that may be more helpful for health care providers.

If you are looking for resources about a specific health condition identified during the screening process, please visit the Conditions Page.

Support/Advocacy Organizations | Professional and Medical Organizations | Federal Agencies

Support/Advocacy Organizations

Professional and Medical Organizations

Some professional organizations create statements to share or clarify their position on newborn screening. Organizational statements on newborn screening, if available, are included below.

Federal Agencies

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