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Newborn Screening Resources

Newborn screening (NBS) includes a series of tests: Blood Spot Screening, Pulse Oximetry Screening for critical congenital heart disease, and Hearing Screening. However, it is more than only these tests. NBS is an interconnected system of organizations, programs, and experts who work together to make sure that caregivers and health professionals have information they need to understand NBS and know where to find more information when needed.

Below is a list of trusted resources. Some resources will link to general NBS information while others will be more helpful for healthcare providers. For resources for a specific condition, please visit the condition page for recommended links.

Federal Agencies | Professional and Medical Organizations | Support/Advocacy Organizations 

Federal Agencies

Professional and Medical Organizations 

Some professional organizations create statements to share or clarify their position on newborn screening. Organizational statements on newborn screening, if available, are included below.   

Support/Advocacy Organizations

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